Amber's Health Situation

Discussion in 'General Discussion' started by Andreaus Whitefyre, Aug 15, 2017.

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  1. Andreaus Whitefyre

    Andreaus Whitefyre Avatar

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    Greetings my fellow Avatar's,

    Many of you love and care about Amber Raine. As you know from updates, she is having some major health issues, including Lupus and Parkinson's. Unfortunately I know that many of you are not well informed about what is going on with her despite Carlaisle keeping Avatar's radio informed. He can't always post on here so I have asked that this area be created so that I can help keep you wonderful caring folks on the Forums easily informed and updated on her condition. As new information comes up to us on Avatar's Radio, I will send it on here to this thread.

    Thank you, and please keep sending her best wishes, and any questions you might have. I will pass them on to Carlaisle so that he can pass them on to her and then her response will be passed on to me.
     
  2. Timmy Vortex

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    Best wishes!
     
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  3. Leelu

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    Please tell her she is in our thoughts and prayers always. Thank you for keeping us updated.
     
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  4. HoustonDragon

    HoustonDragon Avatar

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    Sending best wishes and thoughts for her recovery. Tell her we miss her and hope she gets feeling better :D
     
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  5. Cordelayne

    Cordelayne Bug Hunter

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    Wishing you all the best Amber! You are, as always, in our thoughts and prayers! :)
     
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  6. 3devious

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    Amber, I charged up my chair just say the word and I'll come rescue you. In the meantime I will annoy the hell out of my coworkers in DHS until they let you go to SotACon 2018. You gotta get better so that my getting fired for being such a pest will not be in vain.
     
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  7. Berek

    Berek Portalarian Emeritus Dev Emeritus

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    Our continued best wishes and full support for you Amber Raine! And thanks @AndreasWhitefire for the continued updates, we appreciate it.
     
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  8. Lace

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    @Amber Raine

    I shot this video thinking of selfish thoughts at first, but always knew this account character was named for you, and our mutual love of a musician. I had noted that likely more than a year ago when I made her and showed her in a first video. Her stealing nature is chaotic, her name is for Joan and the struggles with blackheart records.

    Fast forward to todays news. This whole Taylor swift groping trial, takes me back to Pat Benartar screaming the same thing about groping but she got no justice and could only write about it in her autobiography (which I have like 4 copies signed lol). I am sorry Taylor was groped but before there was youtube, and every song play was at the mercy of a misogynist dj, that was Beanatar's life always. It was in her book and in the comic book I made for her and her husband -- yeah I am a rock geek.

    Again this was supposed to be about you @Amber Raine , but I wanted to share other thoughts with you that I know you would understand. Taylor Swift isn't the first and she won't be the last. In this information age we all just hear about it more, if only Benatar had had the option to give dj's the what for.

    I miss you my fellow Rock Sister, I hope you like my stealing video for its chaotic nature, a mention of you and spotlighting my thief Jett Blackheart!

    Love,
    Lace

     
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  9. Lace

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    @Amber Raine

    So to help ya feel better cause sometimes just a mindset helps here are some photos/videos I have personally shot.

    JJ tissue box ...How many artists have a logo on a tissue box .. I had never seen it in all my rock and roll days so I had to shoot a photo of it. ( dont ask me about my photo of pat benatar's washer and dryer its an inside joke from her auto-biography but yes I have shots of that and the laundry bins form one year, because i found a story from her personal aide so funny)
    [​IMG]

    Not my best shot of joan but it sets the closenest AKA front row baby for this concert.

    [​IMG]

    I love the drums and yes JJ is at my left side right there .. I was focused on the drums .. sue me .. I am still trying to learn to play. Myrom Grombacher of Benatar, and Arejay Hale of Halestorm are my favs .. but Tommy Price I cannot discount.
    [​IMG]

    Now to make ya smile more Amber .. you know how I love Pat Benatar, but one thing she does that would freak most out is how she wipes her sweat on the back of her arm like a blue collar person .... She is such a lady ... but when she sweats its all blue collar and I love it. I snapped this photo backstage one time, I had never seen her so dainty lol.

    [​IMG]

    Now one of my favorites I took of just her backstage aka sideways at a concert.
    [​IMG]


    Now @Amber Raine
    from my private collection my highest hit you tube video rofl and its not sota related its on another account I don't use much anymore


    Still bored Amber?

    How about the first video I ever shot and put on internet, and the first time I created a facebook account with Pat Benatar's father in laws neighbor as my first friend .. sounds stalkerish right . but it all happened backstage one night lol. We still talk on occasion but never about Pat and Neil , its not like that.


    No one will have a video shot like this from a benatar concert .. only caveat is the fade on the sound from this camera from years ago that faded sound on zoom, and I kept wanting to zoom in on her boots, cause I could swear I owned them and was trying to get confirmation she copied ME!.

    (the reason I am obsessed with boots is I had one pair I fought in heavy weapons in sca with that I later saw on album cover with Patty Smyth (married to MacEnroe not the Because the Night Smith one) ...and later changed to some that look like Benatars (before she did) so I am thinking I am boot fashion forward for rock stars lol!


    I truly hope some of my 'Best Shots' make you dsmile @Amber Raine
    Rock On Girl.
     
    Last edited: Aug 16, 2017
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  10. Andreaus Whitefyre

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    @Winfield Carlaisle sent me answers to your questions.

    OK, a few questions (answer as best you can/feel appropriate ... PM me if you desire):

    Can we visit her or her family/friends there? Yes. If you can get to Abbotsford. You can reach out to him in Discord.

    Are funds needed? Meds and Doctors and tests cost alot, so while you may do as you please on this front, she will never ask for them.

    Is she able to talk to us? She can't type so that is a no go. However see answer to question below.

    Have someone video record? That is being looked into.

    Make statements? What do you mean by Statements?

    Can we send more notes and recordings? Always! Absolutely! She loves to hear and read that stuff.

    How or should we we carry on her "work" in SotA in her stead as she recovers? What work are you talking about? The church unfortunately is down until she gets better. Avatar's Radio is taken care of. Jakdaw is the event Coordinator, and Golden does his thing though I am not sure what that is. I think it's nothing.

    Can we send/bring anything to cheer her up? Yes. Send her all the things, and yes, she thanks you and Sean for the secret gift.
     
  11. Andreaus Whitefyre

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    Amber saw the Neurologist. He is sending her to an Acute Pain Specialist, and a Rhumatologist.

    This means she is still in INTENSE pain. Nothing has been done other than she has been told she does not need more Surgery.

    The Neurologist says that ALL the things he saw today and discussed with her are pointing TOWARDS the Lupus.

    I will keep you all updated at it goes on.

    To Quote her... "I am in a &%$*ing Lot of PAIN!!!"

    She also says that Carlaisle will be helping her record a message tomorrow.
     
    Last edited: Aug 18, 2017
  12. 3devious

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    At least she doesn't have to have surgery! I know it's a small silver lining but I'll take anything at this point.
     
  13. Brazen Spirituality

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    Hey everybody! Are you wondering what's going on with our Queen of Chaos?

    DJ Squirrel will be hosting "A deep dive into a day in the life of Amber". Come into the Avatars Radio's Discord (link: https://discord.gg/mXdCHpa ,) get out your headset or turn on your speakers, and join us in AR's Water Cooler Voice Channel next Tuesday at 8pm New Britannia time. DJ Squirrel will tell you all about his day spent with Amber as he was able to visit her in person and has seen what is going on in detail.

    And before you ask, this is when DJ Squirrel will have the free time for speaking to us about his visit with Amber just this past day. I wish he could do it right now too... but if I can wait, so can you all. But DO get a post-it and stick it on your PC screen, so you do not miss this date!
     
  14. Andreaus Whitefyre

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    Thank you Brazen for posting this as I was still asleep when this info came about.
     
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  15. 3devious

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    Just adding to this post as a reminder to everyone who is interested to check the Discord. It's past my bedtime but I'll be there!
     
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  16. Brazen Spirituality

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  17. shathiell

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    Thank you for sharing.

    As I mentioned in the other threads I haven't met Amber before however I am once again delighted with the community outpouring of love for her! Listening to her daily struggles and how she keeps soldering it is very hard to fathom how much she struggles to do the basic things we take for granted everyday. It is a horrible thing to suffer though, however you are not alone. There are plenty of people who are keeping you in your thoughts and hoping you pull through everyday Amber. This was evident during the deep dive and it was wonderful to hear your voice. It was also wonderful to hear about your visit from Starr.

    Please keep fighting the good fight.
     
  18. Andreaus Whitefyre

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    Greetings folks, On Tuesday 9/5/2017 Amber went into the hospital for an EMG test.

    This is a shock test to check reflexes and the nervous system. The doctor said the test came back not normal in a negative way but he is still looking over the results to define exactly what that means. He did say that there are multiple things going on at once. Her hand and arm is worse and the issue is spreading down to her left leg and foot which is making it even more difficult to walk, granted walking has already been difficult to begin with. There is almost no reflexes in her left leg and foot. Her foot did not react to the shocks till they set the machine for the high end of the scale. What does this mean for her health? It means we are still unsure of whats causing this as of now other than the Lupus and Parkinsons.

    Today, she is throwing up and has a high Fever but in good spirits.

    Something that was forgotten is that the MRI is on Sunday.
     
    Last edited: Sep 7, 2017
  19. shathiell

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    Thank you for keeping us in the loop. It is unfortunate that they still haven't gotten to the root cause, however know that there are many people out there wishing her the best and that we will do all that we can to assist in her recovery.
     
  20. Andreaus Whitefyre

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    Hey gang, here's an Update from Carlisle.

    "Hey Everyone, Just wanted to give you all an update on Amber and her condition. She loves you all and wants you all to know she is thinking of you a lot. With that said, she also wanted me to update you.

    Since last update on Sept 10th about her MRI, Amber has been having difficulty with balance to the point she staggers and has mentioned a feeling of clausterphobic like everything is closing in on her. She is also having difficulty walking and has a rash that is attributed to lupus on various parts of her body.

    The lack of balance, the feeling of everything closing in on her, the rash and the other ailments has caused much weakness to a point she has been unable to get out of bed for the past 3 days. It takes her a lot of time and energy just to get herself up to walk across the hall as she ends up being dazed and confused with no strength. She says "the apocolypse is upon us, I am zombiefied!"

    Watching her walk I am worried she is going to fall so I have taken to helping her get up and go anywhere she needs to go, including areas of the house.

    As for the MRI She was supposed to get the results of the MRI on Oct 5th but due to conflict of schedule issues for the specialist that appointment has been moved to Oct 10th."

    As you all can see, Amber is still not well, and the Doctors are taking their sweet time in helping her. I for once hopes she gets the help she needs faster than this. She deserves better than she is getting. I will keep you updated as I know more.
     
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